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Supportive
Care Coalition E-News is provided as a service to health care professionals.
The Coalition is comprised of 19 Catholic health organizations dedicated to
advancing excellence in palliative care and end-of-life care within their own
systems and throughout the nation. Our members operate health care facilities
in 48 states. Please visit us on the web at
www.supportivecarecoalition.org.
Supportive Care Coalition News
Our Spring/Summer Supportive Voice publication is now available
online. The theme is Perspectives on
Quality. This publication is free to member systems and
distributed through board members to interested individuals within their
systems. A minimum donation of $15 is suggested for non-members.
Colleen Scanlon, RN, JD, Senior Vice President, Advocacy for
Catholic Health Initiatives, was installed as the Catholic Health Association
chair of the board of trustees at the 90th annual CHA Assembly
in
New Orleans
earlier this month.
Offering a Flickering Light of Hope, written by Karin Dufault, SP, RN, PhD, Coalition executive
director, is now available on the First
Canadian Health Care Conference web site. This article was originally
published in Health Progress, May/June, 2008 and the Fall 2008 edition of
Supportive Voice.
Other News
Health Care Reform Must Include Compassionate Palliative
Care Catholic Health Association Says at Capitol Hill Briefing
Colleen Scanlon, RN, JD, CHA chairperson,
testified at a Capital Hill briefing on June 15 on behalf of CHA's nearly 2,000
member hospitals, health systems, long-term facilities, and other providers
of care. Scanlon said that quality care must include optimal pain management
to address the physical symptoms of pain as well as a focus on the
psychological, social, and spiritual distress that often accompanies
life-threatening illness or the presence of intense, chronic pain. She spoke representing Catholic Health Association and
Supportive Care Coalition.
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Opportunities
Support Critical Palliative Care Legislation
Letters of endorsement are needed by June 19, 2009.
Diane Meier, MD of CAPC has requested support and endorsement of palliative
care legislation proposed by Senators
Rockefeller (D-WV) and Collins (R-ME), at least
some of which is likely to survive into the forthcoming health care reform
bill.
Click
here for a section-by-section summary. A companion bill is under
development in the House. Dr. Meier said, "Your advocacy is essential if
we are to leverage this opportunity to elicit support for passage of the
transformational components necessary to improve access to quality palliative
care for all Americans." For more information, please
see
the e-mail with specific instructions on endorsing this bill.
Risk Evaluation and Mitigation Strategies for Certain
Opioid Drugs; Notice of Public Meeting - FDA
Requests Public Participation in the Development of a REMS Plan.
Comments due June 30, 2009.
The FDA
threatens to remove long-acting opioids unless the benefits of these
medications outweigh the risks. On
February 6, 2009, the Food and Drug Administration (FDA) sent letters to 24
manufacturers of opioid analgesics (both long and short-acting) to let them
know that that they would be required to develop a comprehensive Risk
Evaluation and Mitigation Strategies (REMS) plan. According to the FDA, the
purpose of the REMS would be to ensure that the benefits of the drugs
continue to outweigh the risks (misuse, abuse and accidental overdose). The
FDA is accepting written or electronically-submitted public comments on opioid REMS until June 30, 2009. See the instructions provided by CAPC
here.
AHA Circle of Life Award - Call for Nominations
Applications are due August 9, 2009.
The Circle of Life Award: Celebrating Innovation in Palliative and
End-of-Life Care is presented annually to honor organizations striving to
improve the care provided to patients with life-threatening conditions or
near the end of life. Nominate an organization or program (either your
own or another), or e-mail circleoflife@aha.org.
Applications are available
online. All organizations or groups in the United
States that provide palliative or end-of-life care are eligible for the
award. More information on the award and previous recipients is available at http://www.aha.org/circleoflife.
Oncology
Nursing Society Foundation Breast Cancer Research Grant (RE31)
Letters of Intent due: September 1,
2009
Applications due: October 1, 2009
Purpose: A
major goal of the ONS Foundation is to provide funding to support the ONS
Research Agenda. The agenda’s focus is on areas where gaps exist in the
knowledge base for oncology nursing practice. Applications are invited for breast cancer grant proposals
that address high-priority topic areas identified by the 2009 – 2013 ONS Research Agenda.
Only proposals addressing breast cancer will be considered for funding. The
2009-2013 ONS
Research Agenda identifies critical areas where research is needed to
advance the science and practice of oncology nursing. Award: One $85,000 grant award with
a funding period of up to two years
with NO "no-cost" extensions possible.
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Resources
Pain and Palliative Care Assessment and Research Tools
The International Association for Hospice and Palliative Care has
compiled a list of assessment and research pain and palliative care tools
available for free as a service to the palliative care community worldwide.
Canadian Virtual Hospice
The Canadian Virtual Hospice provides support and
personalized information about palliative and end-of-life care to patients,
family members, health care providers, researchers and educators.
Five Wishes
Five Wishes has become America’s
most popular living will because it is written in everyday language and helps
start and structure important conversations about care in times of serious
illness. More than 12 million copies of Five Wishes are
in circulation across the nation, distributed by more than 15,000
organizations. Five Wishes meets the legal requirements for living wills in 40 states and is useful
in all 50.
HFA Diversity and End-of Life Care Tip Sheet
View and download the Hospice Foundation of America's Diversity and
End-of-Life Care Tip Sheet 2009. The tip sheet was taken in part
from HFA’s 2009 book, Diversity and
End-of-Life Care.
Readings
End-of-Life Decision Making in
Intensive Care Unit: Physician and Nurse Perspectives (link to abstract)
Westphal and McKee American Journal of Medical Quality.2009; 24: 222-228
"A total of 96 physicians and nurses completed a
survey about their general beliefs and practices related to end-of-life care
in the intensive care unit. Nurses were more likely to ask if there was a
living will and to read it. Only 53% of physicians read living wills; however
90% of physicians consider the wishes in the living will when making
recommendations to the family."
Racial and Ethnic Differences in Advance Care Planning:
What Explains the Difference?
"In this article, the authors offer a concise,
practical summary of the research findings reported in Smith AK, McCarthy EP,
Paulk E, et al. Racial and ethnic differences in advance care planning among
patients with cancer: impact of terminal illness acknowledgment,
religiousness, and treatment preferences." American Journal of
Hematology/Oncology. Veronika Steenpass, MD; Alexander K. Smith, MD,
MS, MPH. May 22, 2009. 2008;26:4131-4137.
Palliative Care Nurses Reduce Hospital Admissions
A partnership between Everett Clinic
and Providence Hospice and Home Care of Snohomish County (WA) placed palliative
care nurses in primary care clinics to monitor frail, chronically ill elderly
patients' medical and social care needs, coordinate community services and
discuss end-of-life issues.
Center to Advance Palliative Care Metrics
JOURNAL OF PALLIATIVE MEDICINE
Volume 11, Number 10, 2008
CAPC Palliative Care
Consultation Service Metrics: Consensus
Recommendations
NHPCO
Board Issues Health Care Reform Resolution
The NHPCO board of directors issued a Health Care Reform
Resolution on April 21 that calls attention to critical factors which
legislators, regulators, policy experts, and the Administration should
consider in U.S. health care reform proposals.
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Conferences and Other
Educational Opportunities
The Supportive Care Coalition and Catholic
Health Association are pleased to present . . .
Recovering Our Traditions IV
October 28-30, 2010
St. Louis Marriott Union Station
. . . a three-day conference
focused on advancing knowledge and best practices in palliative and
end-of-life care from the Catholic health ministry perspective. Members of
our dynamic faculty include:
Sr. Peter Lillian DiMaria, O. Carm
Msgr. Charles Fahey
Sr. Margaret Farley, RSM, PhD
Betty Ferrell, PhD, RN
Michael Kearney, MD
Gary Malkin
Mary T. O’Neill,
DMin
Fr. Myles
Sheehan, SJ, MD
Carol Taylor, PhD, RN
Joan Teno, MD
Martha Twaddle, MD
Continuing education credits in
multiple disciplines are pending.
CAPC Campus Online
CAPC Campus OnlineTM is the
e-learning space where you will find courses covering all the structural,
operational and financial essentials of palliative care program development
and sustainability. These CAPC palliative care e-learning courses offer you
complete flexibility because they are available when you are available, 24
hours a day, seven days a week. Cost is only $35 per course, per student.
4th
Annual Promoting Excellence in Pain Management & Palliative Care for
Social Workers
July 31, 2009,
Duarte, CA
Sponsored
by the City of Hope
This
award-winning annual course welcomes psychosocial care professionals on two educational
tracks so that both new and returning attendees will have customized learning
opportunities for skill-building and networking. This year's featured speaker
is Mercedes Bern-Klug, MSW, PhD, a Hartford
Geriatric Social Work Faculty Scholar from the University of Iowa
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Making the Financial Case for Pediatric Palliative Care
CAPC Audio Conference
July 30, 2009, 1:30-2:30 PM Eastern
Featured Speaker: Sarah E. Friebert,
MD, FAAP, FAAHPM, Director
A Palette of Care Program, Haslinger
Division of Pediatric Palliative Care
Associate Professor of Pediatrics,
Akron Children's Hospital
End-of-Life
Nursing Education Consortium (ELNEC) Core Train-The-Trainer Courses
co-sponsored by HPNA
August 13-14, 2009,
Orlando, FL
September 24-25, 2009,
Boston, MA
This ELNEC course is designed for staff who currently work in hospitals,
hospices, palliative care facilities, clinics, long-term care facilities,
home care agencies, colleges and universities who want to increase their
knowledge of end-of-life and palliative care issues. This is a
"train-the-trainer" course and upon completion, you will be able to
take this information back to your institution and teach others.
Intensive Update with Board Review in Geriatric &
Palliative Medicine
October 4-7, 2009, Baruch College Vertical Campus Conference
Center, New York,
NY
This is an important opportunity for close study with nationally recognized
experts in geriatric and palliative medicine fields. Space is limited.
Special discount for registrations received by August 31, 2009.
ELNEC
Pediatric Palliative Care
October 16-17, 2009,
Memphis, TN
In collaboration with St. Jude Children's Research
Hospital.
For more information and to register online, visit www.stjude.org/seminars.
ELNEC
Critical Care train-the-trainer course
October
23-24, 2009, Marriott Washington-Dulles Airport Hotel
There
is limited space at the hotel, so registrations will be taken on a
first-come-first-serve basis. This course is appropriate for nurses, social
workers, psychologists and clergy/chaplains.
18th
Annual Pain Resource Nurse (PRN) Course
September 2-4, 2009,
Duarte, CA
Sponsored by the City of Hope
The PRN course is designed to educate nurses in pain management and prepare
nurses or institutions to develop the role of the Pain Resource Nurse. The
course includes identifying current issues in acute, chronic and
non-pharmacologic pain management; identifying issues in pain management for
pediatric, elderly and other at risk populations; and extending pain
education at your institution. With guest speaker Chris Pasero, MS, RN, FAAN.
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National
Association for Home Care & Hospice 28th Annual Meeting & Exposition
and The Fourth World Congress on Home Care & Hospice
October 10-14, 2009,
Los Angeles Convention Center
The members of NAHC will meet to discuss events and issues, and chart a path
for the future.
CAPC National Level I / II Seminar: Innovative Solutions
for Tomorrow's Palliative Care Program
October 22-24, 2009,
Atlanta, GA, Omni Hotel at CNN Center
The second annual CAPC National Level I / II Seminar is designed to help you
develop solutions to your program's specific issues and challenges. In
addition to focusing on core operational elements that are integral to
program success and sustainability, every seminar offers new cutting-edge
content and topics. The seminar's highly interactive format gives you
multiple opportunities to garner the expertise of faculty and peers.
Respecting
Choices®:
An Advance Care Planning System That Works
Online
Courses
The Respecting Choices Organization and Community Advance Care Planning
Course is a comprehensive curriculum designed to help groups design effective
advance care planning systems and to provide competent advance care planning
facilitators for their organization or community.
Supportive Care
Coalition Members and Staff
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Supportive Care Coalition Member Systems (with location of
main administrative offices)
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Ascension Health
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St. Louis, MO
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Bon Secours Health System
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Marriottsville, MD
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The Catholic Health Association of the United States
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St. Louis, MO
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Catholic Health East
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Newtown Square, PA
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Catholic Health Initiatives
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Denver, CO
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Catholic Healthcare Partners
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Cincinnati, OH
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CHRISTUS Health
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Irving, TX
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Covenant Health Systems
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Lexington, MA
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Franciscan Missionaries of Our Lady Health System
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Baton Rouge, LA
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OSF HealthCare
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Peoria, IL
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PeaceHealth
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Bellevue, WA
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Provena Health
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Mokena, IL
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Providence Health &
Services
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Renton, WA
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Sisters of Charity Health System
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Cleveland, OH
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Sisters of Charity of Leavenworth
Health System
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Lenexa, KS
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Sisters of Mercy Health System
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Chesterfield, MO
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SSM Health Care
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St. Louis, MO
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St. Joseph Health System
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Orange, CA
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Trinity Health
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Novi, MI
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Contribute
to Supportive Care Coalition E-News
Items of interest to palliative care practitioners are welcome and may be
submitted to
Carol River for
possible inclusion in this E-News publication.
Our Mission
We are a coalition of Catholic health
ministries,
informed by our faith and values,
which
through knowledge transfer, advocacy, and partnerships,
advances excellence in palliative care.
Our Vision
We envision a society in which all
persons living with or affected by a chronic or life threatening condition
receive compassionate, holistic, coordinated care. This will include relief of
pain, suffering and other symptoms from the time of diagnosis throughout the
process of living and dying. Such excellent care will be provided according
to need, respecting the values and goals of individuals, their families and
other loved ones. It will assist them to live fully in community and will
support survivors in their bereavement. Through such care, we believe that
God's healing love is revealed.
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In this issue
News
Supportive Care Coalition News
Health Care Reform Must Include Compassionate Palliative
Care
Opportunities
Support Critical Palliative Care Legislation
Risk Evaluation and Mitigation Strategies for Certain
Opioid
Drugs; Notice of Public Meeting
AHA Circle of Life Award - Call for Nominations
Oncology Nursing Society Foundation Breast Cancer
Research
Grant
Resources
Pain and Palliative Care Assessment and Research Tools
Canadian Virtual Hospice
Five Wishes
HFA Diversity and End-of-Life Care Tip Sheet
Readings
End-of-Life
Decision Making in Intensive Care Unit: Physician and
Nurse Perspectives
Racial and Ethnic Differences in Advance Care Planning: What
Explains the
Difference?
Palliative Care Nurses Reduce Hospital
Admissions
Center to Advance
Palliative Care Metrics
NHPCO Board Issues Health Care Reform Resolution
Conferences and Other Educational Opportunities
Recovering Our Traditions IV
CAPC Campus Online
Promoting Excellence in Pain Management &
Palliative Care
Making the Financial Case for Pediatric Palliative
Care
ELNEC Core Train-The-Trainer Courses
Intensive Update with Board Review in Geriatric &
Palliative
Medicine
ELNEC Pediatric Palliative Care
ELNEC Critical Care train-the-trainer course
Pain Resource Nurse (PRN) Course
National Association for Home Care & Hospice 28th
Annual Meeting & Exposition and The Fourth World Congress on Home
Care
& Hospice
CAPC National Level I / II Seminar
Respecting Choices®: An Advance Care Planning System
That
Works
Supportive Care Coalition Member Systems and Staff
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The
Supportive Care Coalition and Catholic Health Association are pleased to
present Recovering Our Traditions,
our fourth national Congress on palliative care scheduled for October 28-30, 2010 in St. Louis.
Watch for more details coming soon to the Coalition web site. See
you in St. Louis!
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