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For Clinical Care
- American Pain Foundation Web site offers a comprehensive pain
library, clinical trial information, and other practical resources to improve
the quality of life of people with pain.
- American Society on Aging is the largest organization of
professionals in the field of aging. Web site resources include publications and
educational opportunities to enhance the knowledge and skills of people working
with older adults and their families.
- The Center to Advance Palliative Care (CAPC) Web site provides
professionals with the tools and technical assistance necessary to start and
sustain successful palliative care programs.
- CAPC Palliative Care Discussion Forum CAPCconnect, a forum
dedicated to palliative care program development and growth. Discussion topics
include designing a program, staffing, data collection and measurement,
pediatric palliative care and many others.
- End of Life Nursing Education Consortium project is a
national education initiative to improve end-of-life care in the United States.
The project provides undergraduate and graduate nursing faculty, CE providers,
staff development educators, specialty nurses in pediatrics, oncology, critical
care and geriatrics, and other nurses with training in end-of-life care so they
can teach this essential information to nursing students and practicing nurses.
- Guide to Building a Hospital-Based Palliative Care Program
Two
copies for the price of one of A Guide to Building a Hospital-Based Palliative
Care Program are being offered by the Center to Advance Palliative Care. The
guide is a comprehensive manual that provides step-by-step guidance for building
and managing a successful palliative care program. Topics covered range from
cultivating stakeholders and program planning to design, implementation,
marketing, measurement and long-term sustainability. For more information,
please visit www.capc.org.
- Growth House, serves as an international portal to
resources for life-threatening illness and end-of-life care.
- Hospice Foundation of America's Hospice and Caregiving Blog
The foundation's Hospice and Caregiving Blog gathers and disseminates
information useful to professionals and consumers from a single destination to
inform, offer support, and generate online comments about important end-of life
issues. Some of the blog's most recent postings include, Informing the Public
About Hospice in the Internet Age, An Inordinate Response to Loss, and Coping
With Grief During the Holidays.
- MesoLink.org is a site created to provide patients, families and ceregivers with up to date information on mesothelioma. We strive to provide a complete overview of the disease and all aspects of it. This includes general information on the disease, links to other sites and online resources that can provide important mesothelioma and cancer-related information, words of hope and support from those living with the cancer, and a free book by Lorraine Kember, who cared for her husband with mesothelioma. Mesothelioma information for caregivers at MesoLink.org.
- Mesothelioma Cancer Center operates Asbestos.com which is committed to providing the latest, up-to-date information to visitors in hopes of spreading awareness about the dangers of mesothelioma. This website offers a one-stop resource on all asbestos issues ranging from occupational exposure to mesothelioma treatment options. This center offers comprehensive and cutting edge information for people who have received a mesothelioma diagnosis.
- The National Consensus Project developed Guidelines through
consensus of health care organizations and describe the core precepts and
structures of clinical palliative care programs.
- National Hospice and Palliative Care Organization is the
largest nonprofit membership organization representing hospice and palliative
care programs and professionals in the United States. The organization is
committed to improving end -of -life care and expanding access to hospice care
with the goal of profoundly enhancing quality of life for people dying in
America and their loved ones.
- National Healthcare Decisions Day is held each year in April. On this day, throughout the
country, healthcare providers, professionals, chaplains, attorneys, and others
will participate in a massive effort to highlight the importance of advance
healthcare decision-making. To facilitate this process, initiative organizers
will provide clear, concise, and consistent information and tools for the public
to execute written advance directives(healthcare power of attorney and/or living
will) in accordance with their applicable state laws.
- National Palliative Care Research Center is a national
initiative committed to stimulating, developing and funding palliative care
research.
- Palliative Dementia Care Resources
Palliative Dementia Care Resources (PDCR) was established in 2006 to provide resources and information to help people make decisions about end-of-life care and services for individuals with dementia. PDCR is committed to advancing quality end-of-life care for individuals with advancing dementia and serving as a resource for family and professional caregivers. Created by Polisher Research Institute and funded by the Farber Family Foundation, PDCR guides professional and family caregivers to news, educational materials, and organizations related to palliative care for individuals living with advanced dementia. In addition, PDCR provides a forum in which family and professional caregivers exchange views, identify needs and possible solutions.
- Population-based Palliative Care Research Network conducts on-going
studies of care at the end of life. Based at the University of Colorado Health
Sciences Center in Denver, the Web site contains news about studies and research,
newsletters, and links to sites that support the organization's research.
http://www.uchsc.edu/popcrn/index.html
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