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Register online NOW! Early-bird pricing available through August 27.
Presented by the Supportive Care Coalition and sponsored in part by the Catholic Health Association, Recovering Our Traditions will be held October 28-30, 2010 in St. Louis. |
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See you in St. Louis! |
Featured Congress Speakers
 Margaret Campbell, PhD, RN, FAAN is the director of nursing research at Detroit Receiving Hospital and assistant professor of research at Wayne State University College of Nursing. She is a nationally recognized
expert in hospital-based palliative care consultation and has been active in health
services research to measure consultation outcomes. Dr. Campbell has participated in
numerous national initiatives to improve care of the dying, including the Institute of Medicine’s report, “Approaching Death,” the Last Acts program, and the Institute for Healthcare Improvement breakthrough collaborative “Improving Care at the End of Life,” and she served on the advisory committee to the National Consensus Project. She is the immediate past president of the Hospice and Palliative Nurses Association. Her current research focuses on the bio-behavioral responses associated with dyspnea in cognitively impaired patients. Dr. Campbell has been extensively published in peer-reviewed journals and recently published Nurse to Nurse Palliative Care.
Plenary session: Assessing Respiratory Distress for Patients Who Cannot Self Report Dyspnea
Dyspnea is currently measured using scales and instruments that rely on the patient’s ability to self-report. Yet, as death nears, the ability to provide a self-report may become difficult or impossible
or yield an ambiguous response. Using a bio-behavioral framework may enhance the clinician’s ability to recognize, treat and measure response to the treatment of respiratory distress. The presenter will introduce a Respiratory Distress Observation Scale (RDOS) and review studies conducted to test its validity in the care of the cognitively impaired.
 Myles Sheehan, SJ, MD is the current provincial of the New England Province of Jesuits. A specialist in internal medicine and geriatrics, he most recently served as senior associate dean at Loyola University Chicago’s Stritch School of Medicine and was the Ralph P. Leischner Professor of Medical Education as well as a professor in the department of medicine. His interests include medical ethics, medical education, and topics related to religion, spirituality, ethics and medicine. He is a fellow of the American College of Physicians and was named one of the “Top Doctors in Chicago.” Over the years, Dr. Sheehan has combined his medical, educational and religious experience to improve palliative and end-of-life care. As part of his Project on Death in America (PDIA) fellowship in 1999, he developed a curriculum on end-of-life care in the Catholic tradition. The Supportive Care Coalition thanks Dr. Sheehan for his gracious permission to use “Recovering Our Traditions” as our Congress theme.
Plenary session: Supporting the Vulnerable in our Midst: Palliative Care’s Mandate
The Incarnation calls us to honor the dignity of our shared human nature and to be the type of community that cares for our most vulnerable members. With the beginning of health
care reform in this country, we face many challenges to provide effective, accessible and affordable high-quality palliative care services for all persons, especially those who live on the margins
of our society. Dr. Myles Sheehan will present his perspectives as both a Catholic priest and physician on the Gospel mandate to reach out to the vulnerable and disenfranchised in our communities.
View the full 2010 Supportive Care Coalition Congress agenda online or download the brochure (PDF).
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Coalition Member News
Coalition Board Chair, James Shaw, MD, Receives Regence Foundation Sojourns Award
Dr. James Shaw, director of ethics and medical director, Providence Center for Faith and Healing, Spokane, Wash., has been named as a 2010 Regence Foundation Sojourns Award honoree. The Sojourns Award was created to recognize leaders in the field of palliative and end-of-life care, to share their innovations with the broader community and to invest in their future work. The Sojourns Award includes a $50,000 grant from The Regence Foundation to support continued leadership and advancements in palliative care. Congratulations to Dr. Shaw and his team!
Catholic Health Initiatives Affiliate, Franciscan Hospice & Palliative Care Receives Catholic Health Association's 2010 Achievement Citation
"Each year, CHA's Achievement Citation recognizes an outstanding program or service that exemplifies the ministry's commitment to carry on Jesus' mission of compassion and healing. The Achievement Citation is given to a CHA-member organization that is the creator and lead sponsor or partner in an original, bold, innovative program that delivers measurable results for the community served. The recipient program is selected because it inspires the sponsoring organization, the people it serves and the broader community and beyond. The program is available for replication within CHA's membership."
"Franciscan's comprehensive, compassionate end-of-life continuum of care serves patients and families from the time of diagnosis (through outreach services as well as in-home and inpatient care), and continues after the patient dies, encompassing palliative care, hospice and bereavement services. Focusing on the quality of remaining life, a multidisciplinary team works with the patient's physician to meet the physiological, psychological, spiritual and practical needs of patients and their families. Franciscan implemented the first full-time, physician-directed hospital palliative medicine program in Washington State.
Mimi Pattison, MD, Medical Director, Franciscan Hospice, is also a 2010 Regence Foundation Sojourns Award recipient.
SCC Member System, Providence Health & Services Receives Circle of Life Award and Citation of Honor
Congratulations is extended to Providence Health & Services for a 2010 Circle of Life award for their partnership in the Snohomish County Palliative Partnership of Everett, Wash., and for their citation of honor received by Providence Trinity Health Care in Torrance, California. A complete list of 2010 Circle of Life winners is below.
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In the News
AHA Circle of Life®: Celebrating Innovation in Palliative and End-of-Life Care, 2010 Winners
AHA honored the following 2010 Circle of Life winners on July 23 in San Diego:
Department of Veterans Affairs, VA New York/New Jersey Healthcare Network, Brooklyn, New York
Kansas City Hospice & Palliative Care, Kansas City, Missouri
Snohomish Palliative Partnership, Everett, Washington
2010 Citations of Honor:
Hospice & Palliative Care of Western Colorado, Grand Junction, Colorado
New York City Health and Hospitals Corporation, New York, New York
Providence TrinityCare Hospice - Providence Little Company of Mary Medical Center Torrance Palliative Care Partnership, Torrance, California
Sharp HospiceCare, San Diego, California
Palliative Care & Hospice Services of Summa Health System, Akron, Ohio
Download the 2010 Circle of Life booklet (PDF).
Personalize Your Care Act of 2010, H.R. 5795
Congressman Earl Blumenauer, Third District of Oregon, introduced the Personalize Your Care Act of 2010 on July 20. Download the fact sheet for more information.
This bill has been endorsed by:
AARP, American Academy of Hospice and Palliative Medicine, American Geriatrics Society, American
Hospital Association, Alzheimer’s Association, National Hospice & Palliative Care Organization, and the Supportive Care
Coalition.
View the library of Congress full bill text.
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Opportunities
Fellow in Palliative Care Nursing (FPCN)
In 2008, the HPNA Board initiated the Fellow in Palliative Care Nursing (FPCN) intended for members who are nursing leaders in education, management, advanced practice and research (association executives; chancellors and deans; hospital chief executives and vice presidents for nursing; nurse consultants; and researchers and entrepreneurs). Currently 27 HPNA members are Fellows in Palliative Care Nursing. Visit HPNA online for information about the FPCN program, to view the listing of Fellows or to access the application which is due September 1, 2010.
Call for Manuscripts: Journal of Social Work in End-of-Life and Palliative Care
The Journal of Social Work in End-of-Life and Palliative Care has issued a call for manuscripts for a special thematic issue on “Pediatric Issues in Palliative and End-of-Life Care."
Manuscripts for this issue are due by September 15, 2010. For this special thematic issue, manuscripts submitted for consideration could include a range of issues involving children and families dealing with chronic or life-limiting illnesses, such as use of palliative care or hospice care, pain management issues with children; plan of care/decision-making issues; working with children and families of diverse cultural populations, family members’ anticipatory grief/ bereavement; children’s grief/bereavement related to sibling or parent death, suicide or other traumatic death; unique developmental issues for children who are dying, their siblings and the impact on family development (age appropriate interventions, sibling, school and peer issues); professional caregiver issues or any other related topic. Questions? Contact: Ellen L. Csikai, PhD, editor at 205-348-4447 or ecsikai@sw.ua.edu.
2011 Hastings Center Cunniff-Dixon Physician Awards
Care for patients at the end of life has long troubled American medicine, not only in its failure to provide good palliative care, but also in the relationship between doctors and patients. Many efforts to remedy this situation have emerged: a growing and strengthening palliative care movement, better understanding of the situation of patients at the end of life, a sharper focus on the values and behavior of physicians in their care of the dying, and a more general effort to gain medical recognition that end-of-life care is just as important as care during all other phases of life. Great progress has been made, but there is still a distance to go. As the number and percentage of people who die from chronic and degenerative diseases increase, the physician skills and virtues necessary to provide good end-of-life care also increase.
The aim of The Hastings Center Cunniff-Dixon Physician Awards is to foster those skills and virtues by providing financial prizes to those physicians, young and old, who have shown their care of patients to be exemplary, a model of good medicine for other physicians, and a great benefit in advancing the centrality of end-of-life care as a basic part of the doctor-patient relationship.
This year there are five prizes totaling $95,000; one prize of $25,000 for a senior physician; one prize of $25,000 for a mid-career physician and three prizes of $15,000 for early-career physicians. Nominations will be accepted through September 30, 2010. Visit The Hastings Center for a nomination form. Download the brochure.
Become Board Certified in Hospice and Palliative Medicine
A 12-month accredited fellowship program will be required after the grand fathering period ends in 2012. Physicians interested in gaining entry into the examination before then should be working now to attain the required number of clinical hours and interdisciplinary team involvement. The next American Board of Medical Specialties (ABMS) hospice and palliative medicine certification exam is scheduled for November 16, 2010. Registration cycles have been announced for several of the 10 co-sponsoring boards. Visit the American Academy of Hospice and Palliative Medicine (AAHPM) to learn how you can take advantage of this limited opportunity to certify now.
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Readings
Letting Go: What Should Medicine Do When It Can’t Save Your Life?
by Atul Gawande
The New Yorker, August 2, 2010
Evaluation of the FICA Tool for Spiritual Assessment
Tami Borneman, RN, MSN, CNS, FPCN, Betty Ferrell, RN, PhD, MA, FAAN, FPCN, Christina M. Puchalski, MD, MS, FACP. Journal of Pain and Symptom Management. Published online July 9, 2010.
"Context: The National Consensus Project for Quality Palliative Care includes spiritual care as one of the eight clinical practice domains. There are very few standardized spirituality history tools.
Objectives: The purpose of this pilot study was to test the feasibility for the Faith, Importance and Influence, Community, and Address (FICA) Spiritual History Tool in clinical settings. Correlates between the FICA qualitative data and quality of life (QOL) quantitative data also were examined to provide additional insight into spiritual concerns.
Conclusion: Findings suggest that the FICA tool is a feasible tool for clinical assessment of spirituality. Addressing spiritual needs and concerns in clinical settings is critical in enhancing QOL. Additional use and evaluation by clinicians of the FICA Spiritual Assessment Tool in usual practice settings are needed."
Read the full abstract.
Viewing the Body After Bereavement Due to a Traumatic Death: Qualitative Study in the UK
A. Chapple, S. Ziebland, BMJ 2010;340:c2032. Published online April 30, 2010.
"OBJECTIVE: Whether bereaved relatives should be encouraged to view the body after a traumatic death is uncertain. This analysis of narrative interviews interprets people's accounts of why and how they decided whether to view the body and their emotional reactions to this, immediately and at a later stage. DESIGN: In depth interviews with qualitative analysis. PARTICIPANTS: A maximum variation sample of 80 people bereaved because of suicide or other traumatic death. SETTING: Most people were interviewed in their homes. RESULTS: For those who had the option, decisions about seeing the body varied. Some wanted someone else to identify the body, because they feared how it might look or preferred to remember their relative as they had been in life. Those who had wanted to see the body gave various reasons beyond the need to check identity. Some felt they ought to see the body. Others felt that the body had not lost its social identity, so wanted to make sure the loved one was "being cared for" or to say goodbye. Some people wanted to touch the body, in privacy, but the coroner sometimes allowed this only after the postmortem examination, which made relatives feel that the body had become police property. Seeing the body brought home the reality of death; it could be shocking or distressing, but, in this sample, few who did so said they regretted it. CONCLUSIONS: Even after a traumatic death, relatives should have the opportunity to view the body, and time to decide which family member, if any, should identify remains. Officials should prepare relatives for what they might see, and explain any legal reasons why the body cannot be touched. Guidelines for professional practice must be sensitive to the needs and preferences of people bereaved by traumatic death. The way that relatives refer to the body can be a strong indication for professionals about whether the person who died retains a social identity for the bereaved." The full text is available online.
Mercy Gilbert Medical Center Becomes First in the Nation to Enable Patients to Interact with Friends and Family Through Skylight's Video Chat
Skylight Healthcare Systems, the leading provider of Interactive Patient Care systems announced that Mercy Gilbert Medical Center, a member of Catholic Healthcare West (CHW), became the first hospital in the nation to introduce live video connection from patients in their Family Birth Center and Palliative Care Program to family members and friends outside of the hospital. This new feature is a fully integrated add-on to their Skylight ACCESS Interactive Patient Care System called iCareChat™.
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Resources
The IPAL-ICU Project provides essential tools and resources to support the improvement of palliative care for all ICU patients and their families. IPAL-ICU is committed to assisting providers across disciplines to deliver outstanding palliative care as an integral component of comprehensive critical care, from the time of ICU admission, regardless of prognosis. The IPAL-ICU Project is supported by the Center to Advance Palliative Care and the National Institutes of Health/National Institute on Aging.
Hospice Information Center for families, friends and professionals
Hospice Foundation of America (HFA) is pleased to announce its newest educational offering, the Hospice Information Center for families, friends and professionals. This centralized resource is funded by the Centers for Medicare & Medicaid Services (CMS).
EPERC Fast Facts
Fast Facts and Concepts provide concise, practical, peer-reviewed, and evidence-based summaries on key topics important to clinicians and trainees caring for patients facing life-limiting illnesses. Fast Facts are designed to be easily accessible and clinically relevant monographs on palliative care topics. They are intended to be quick teaching tools for bedside rounds, as well as self-study material for health care professional trainees and clinicians who work with patients with life-limiting illnesses.
#232 Family Presence During Resuscitation
This Fast Fact discusses the potential benefits and pitfalls of FPDR.
#231 Practical Aspects of Using NPPV at the End of Life
This Fast Fact discusses practical aspects of how using Non-Invasive Positive Pressure Ventilation (NPPV) can be used to palliate dyspnea in dying patients.
#222 Preparing for the Family Meeting
Careful preparation for the family meeting is essential to ensure the best outcome.
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Conferences and Other Educational Opportunities
Register online TODAY! Early-bird pricing available through August 27.
Presented by the Supportive Care Coalition and sponsored in part by the Catholic
Health Association of the United States.
October 28-30, 2010
St. Louis Marriott Union Station
Download the Congress brochure
Join us in October for Recovering Our Traditions, an exceptional educational conference. This unique event is grounded in the roots of the Catholic health care ministry which compel us to provide the highest quality of compassionate care for patients with life-limiting illness, especially those who are the sickest and most vulnerable.
The conference will examine current trends, recent developments and leading practices in palliative care programs across the continuum of care, offering successful growth and sustainability strategies for the next generation of palliative care services. A wide range of plenary and concurrent sessions will address timely topics, exploring physical, psycho-social, cultural and spiritual domains of care. Participants will gain knowledge and skills in optimizing structures and processes that transform the delivery of care and contribute to high patient and family satisfaction.
With a distinguished faculty of nationally recognized experts, Recovering Our Traditions blends the art and science of palliative care. Health care professionals will learn from innovative models of clinical excellence that will benefit their diverse ministry settings. At the same time, participants will be inspired and invigorated by a renewed sense of passion and commitment to service, relieving suffering and sustaining hope for those entrusted to their care. See you in St. Louis!
Register online! Early-bird pricing available through August 27.
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Bereavement Services Fall Webinar
Respectful Disposition and Other Aspects of Caring for Women Who Miscarry
September 9, 2010, 12:30-1:30 p.m. Central
Objectives: Describe possible responses women have to early pregnancy loss; list two elements of respectful disposition after a miscarriage; discuss follow-up care after a miscarriage. Purpose: The purpose of this Webinar is to enhance participants’ skills in caring for women who miscarry and their families. Register online.
CAPC Audio Conference
The Palliative Care Social Worker: Opportunities for Collaboration, Triage, Education and Outreach
September 15, 2010, 1:30-2:30 p.m. Eastern
Palliative care social workers face increasing demands to identify patients and families most in need of specialist-level psychosocial intervention. At the same time, there are greater opportunities for formal and informal social work peer education on issues pertaining to care of the seriously ill. This session will help palliative care social workers and their colleagues to identify several models of collaboration, triage and education for times when team census is high, as well as strategies for effective case finding and outreach when census is low. Learn more and register online.
Catholic Eldercare: A Life-Giving Experience
December 9, 2010, Noon - 1:30 p.m. Eastern
CHA Members: Login to receive member pricing!
Catholic-sponsored eldercare organizations strive to provide a life-giving experience for those we serve and for eldercare workers. A vision for life-giving communities is described in the Catholic Health Association's new booklet, Catholic Eldercare: A Life-Giving Experience (PDF). This interactive webinar will provide an opportunity for those working in eldercare to explore how they can contribute to a life-giving experience and what it means to work in a life-giving environment.
This webinar is for persons who provide eldercare such as administrators, clinicians or direct care workers. There is no charge for CHA members. Consider making it part of your staff development program. Register today!
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HPNA Web Teleconferences for Nursing Assistants
Fourth Wednesday, 3:00-3:30 p.m. Eastern
$40 per site
The purpose of the nursing assistant teleconference is to present practical information specifically related to patient care, support of the family, the nursing assistant role as a member of the interdisciplinary team, and other practice issues.
Register online (Registration ends 24 hours prior to the teleconference.)
09-22-10 |
Cancer Related Issues |
10-27-10 |
Palliative Sedation |
11-24-10 |
CHF - Management and Trajectory of the Disease |
12-22-10 |
Elder Abuse |
End-of-Life Nursing Education Consortium (ELNEC) 2010 Training Calendar
The End-of-Life Nursing Education Consortium (ELNEC) project is a national education initiative to improve palliative care. The project provides undergraduate and graduate nursing faculty, CE providers, staff development educators, specialty nurses in pediatrics, oncology, critical care and geriatrics, and other nurses with training in palliative care so they can teach this essential information to nursing students and practicing nurses. Download the ELNEC fact sheet. Questions? Contact Pam Malloy at pmalloy@aacn.nche.edu.
Palliative Care Leadership Centers™ (PCLC) 2010 Trainings
To learn more, choose the PCLC that is right for you, and register, visit the Center to Advance Palliative Care's PCLC Web. Palliative Care Leadership Centers™ (PCLC) is a national training and mentoring initiative supported by a consortium of funders, with direction and technical assistance provided by the Center to Advance Palliative Care (CAPC). PCLC offers training and mentoring to help start and expand hospital palliative care programs in the United States. For general questions, please contact Jennifer Raiten at Jennifer.Raiten@mssm.edu or (212) 201-2683.
APPEAL Training: A Progressive Palliative Care Educational Curriculum for the Care of African Americans at Life's End
Presented by the Duke Institute on Care at the End of Life
Visit the APPEAL Web site for more information.
2010 Training Locations:
New Orleans, LA
Memphis, TN
Abington, PA
Birmingham, AL
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| Supportive Care Coalition Member Systems (main administrative offices)
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| Ascension Health |
St. Louis, MO
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| Bon Secours Health System
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Marriottsville,
MD
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| The Catholic Health Association of the
United States
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St. Louis,
MO
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| Catholic Health Initiatives
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Denver,
CO
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| Catholic Healthcare Partners
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Cincinnati,
OH
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| CHRISTUS Health
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Irving,
TX
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| Covenant Health Systems
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Lexington,
MA
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| Franciscan Missionaries of Our Lady Health System
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Baton Rouge,
LA
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| OSF HealthCare
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Peoria,
IL
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| PeaceHealth
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Bellevue,
WA
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| Provena Health
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Mokena,
IL
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Providence
Health &
Services
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Renton,
WA
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Resurrection Health Care |
Chicago, IL
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| Sisters of Charity Health System
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Cleveland,
OH
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| Sisters of Charity of
Leavenworth
Health System
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Lenexa,
KS
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| Sisters of Mercy Health System
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Chesterfield,
MO
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| SSM Health Care
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St. Louis,
MO
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St. Joseph
Health System
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Orange,
CA
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| Trinity Health
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Novi,
MI
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| Supportive Care Coalition Staff |
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Tina Picchi, MA, BCC, Executive Director
503.215.5053
tina.picchi@providence.org
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Judy
Lundeen, Program Manager
503.215.7009
judith.lundeen@providence.org |
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Carol
River,
Administrative Assistant
503.215.7070
carol.river@providence.org |
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Mailing address:
Supportive Care Coalition
c/o Providence Health & Services
4805 NE Glisan, 2M06
Portland, OR 97213 |
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Contribute to Supportive Care Coalition E-News
Items of interest to palliative care practitioners are welcome and may be
submitted to Carol River for
possible inclusion in this E-News publication. |
Our
Mission
We are a coalition of Catholic health
ministries informed by our faith and values, which
through knowledge transfer, advocacy, and partnerships advances excellence in palliative care. |
Our
Vision
We envision a society in which all
persons living with or affected by a chronic or life threatening condition
receive compassionate, holistic, coordinated care. This will include relief of
pain, suffering and other symptoms from the time of diagnosis throughout the
process of living and dying. Such excellent care will be provided according
to need, respecting the values and goals of individuals, their families and
other loved ones. It will assist them to live fully in community and will
support survivors in their bereavement. Through such care, we believe that
God's healing love is revealed. |
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