E-News August 2006
In this issue...
NEWS
1. Trinity Health Facility Honored with Circle of Life Award 2. Deadline Looms for Commenting on Working Group Recommendations 3. New Issue of Supportive Voice Available 4. Promoting Excellence in End-of-Life Care Offices Close, Work Lives On 5. NHPCO Satellite Office Opens at Duke University
OPPORTUNITIES
6. American Cancer Society Extends Research Grant Application Deadline 7. CHA Call for Nominations
READINGS
8. Future of Reform Outlined in Final Issue of State Initiatives 9. International Expert Advisory Group Report on Palliative Care
RESOURCES
10. Medically Administered Nutrition and Hydration CHA Summary Available 11. Updated EDELE Web Site Features Data for All States 12. New Survey Tool from NHPCO Focuses on Family 13. Improving Pain Management Through Education
CONFERENCES
14. Fast-Track Your Palliative Care Program: Palliative Care Leadership Center (PCLC) Training 15. Pain Resource Nurse Training Course at the City of Hope Comprehensive Cancer Center 16. NHPCO’s 21st Management and Leadership Conference 17. Catholic Charities USA Reviving the Common Good, Renewing Covenant with the Poor 18. 16th International Congress on Care of the Terminally Ill 19. Communities of Color and Ideas for Change Audio Conference 20. The 15th National Perinatal Bereavement Conference 21. Practical Aspects of Palliative Medicine Integrating Palliative Care into Clinical Practice 22. Building Bridges: Interdisciplinary Paths to Palliative & End-of-Life Care for People with Diverse Conditions 23. 4th International Multidisciplinary Conference on Spirituality & Health 24. ONS Advanced Practice Nursing Conference 25. 7th Annual Institutes of Learning 26. To Comfort Always: A Course on Palliative Care 27. Fifth International Palliative Care in the 21st Century Conference 28. Ethics in the Healthcare Workplace: What’s Really at Stake? 29. 2007 Call for Candidates: The End-of-Life Care Practitioner Program
NEWS 1. Trinity Health Facility Honored with Circle of Life Award At St. Joseph Mercy Oakland, Pontiac, MI, pain and suffering in any form is not acceptable. The hospital’s palliative care program was awarded a 2006 Circle of Life Award: Celebrating Innovation in End-of-Life Care on July 14. The program has changed the standard of care and culture of the entire hospital. Broad in scope, the program supports areas and services in inpatient care, outpatient clinic, chronic pain control, home care bridge program and sickle-cell social support. Examples of innovation are a perinatal program for early miscarriages and a stroke care model that includes palliative care. The facility also provides extensive assistance to other hospitals wishing to develop palliative care programs. The two other recipients honored were Continuum Hospice Care in New York, NY and Fairview Health Services in Minneapolis. MN. Awardees also received $10,000 to further their work.
2. Deadline Looms for Commenting on Working Group Recommendations Comment deadline is August 31, 2006
Your input is needed on The Citizens’ Health Care Working Group interim recommendations. Recommendation six is directed to Palliative Care and many of the comments so far submitted demonstrate a profound misunderstanding of palliative care. The recommendations will be submitted to President Bush and could influence future federal support of palliative care. To offer your comments and/or review the document and comments of others, visit www.CitizensHealthCare.gov. 3. New Issue of Supportive Voice Available The Summer 2006 Supportive Voice newsletter is off the press and will soon be posted on our web site. Articles include features about the Coalition’s hospital-based Spirituality Initiative, as well as the Program of All-Inclusive Care for the Elderly (PACE) model of care delivery for frail elders that is utilized as a unique model for supportive, end-of-life care through Providence Health System’s ElderPlace. If you would like to be added to our mailing list for a hard copy, please let us know via email peggy.berwick@providence.org
4. Promoting Excellence in End-of-Life Care Offices Close, Work Lives On The Robert Wood Johnson Foundation’s national program office, Promoting Excellence in End-of-Life Care, closed July 31. During the program’s nine years of operation, and beyond, its projects and initiatives will continue to positively influenced the way Americans will be cared for through the end of life. A full array of reports, monographs and in-depth information about the Promoting Excellence projects will continue to be available at the program web site, www.promotingexcellence.org. Additionally, through collaborations with the National Hospice and Palliative Care Organization and the American Association of Critical Care Nurses, the program’s valuable tools and resources from the Promoting Excellence initiatives will continue to be accessible to clinicians and researchers for years to come.
5. NHPCO Satellite Office Opens at Duke University The National Hospice and Palliative Care Organization opened its first satellite office housed at the Duke Institute on Care at the End of Life, based at Duke University Divinity School in Durham, NC. The creation of the satellite office will enhance existing programs while increasing opportunities for future collaboration. NHPCO staff working out of Durham will focus on developing outreach strategies, creating educational resources, and strengthening community networks and coalitions as part of the organization’s Caring Connections initiative.
OPPORTUNITIES
6. American Cancer Society Extends Research Grant Application Deadline Letters of intent deadline extended to August 15, 2006
American Cancer Society (ACS) is soliciting applications for pilot/exploratory research grants in palliative care of cancer patients and their families. The grants provide funding for investigators performing pilot and exploratory research studies whose purpose is to test interventions, develop research methodologies, and explore novel areas of research. All who are interested are encouraged to apply. www.capc.org
7. CHA Call for Nominations Nominations accepted through October 2, 2006
To honor distinguished individuals and innovative programs that further the healing ministry of Jesus, the Catholic Health Association is calling for nominations for four awards to be presented at the Association’s 92nd assembly in June 2007. Nominations are being taken in these categories: Achievement Citation, for innovative programming; Sister Mary Concilia Moran, RSM, Award; Lifetime Achievement Award, and the Midcareer Award. www.chausa.org/2007Nominations
READINGS
8. Future of Reform Outlined in Final Issue of State Initiatives A big challenge identified by the survey of 35 palliative care/end-of-life experts reported in the last issue of State Initiatives in End-of-Life Care, was the need to shift the reform paradigms. “The real challenge for the near-term is to find effective ways to teach practitioners to use nonpharmacological treatments – psychological, psychosocial, and spiritual interventions – and provide ways to integrate them into medical approaches,” said Richard Payne, MD, director of the Duke Institute on Care at the End of Life. Copies of all 25 issues are available through the Center for Practical Bioethics. http://www.practicalbioethics.org/cpb.aspx?pgID=895
9. International Expert Advisory Group Report on Palliative Care This international advisory group report puts Irish national policy into practice for palliative care, and is the most comprehensive set of standards of design and practice every produced in Ireland. “This unique set of standards provides a template for many other countries, and it will ultimately make a major contribution to the care of patients and families around the world,” notes committee chair Professor Eduardo Bruera in his preface to the report. To read the report, http://www.stpatricksmarymount.ie/, then click on the report title. Source: Hospice News Network August 8, 2006
RESOURCES
10. Medically Administered Nutrition and Hydration Summary Available A dialogue summary of the January 2006 Dialogue on Medically Administered Nutrition and Hydration (MANH) is available to members on the Catholic Health Association web site. Dialogue discussions centered on Catholic moral tradition, recent church statements, and Catholic health care clinical practices related to MANH. Participants included several theologians, ethicists, clinicians, Catholic health care executives and representatives of the United States Conference of Catholic Bishops’ committees on Doctrine and Pro-Life Activities. www.chausa.org/nutritionhydration
11. Updated EDELE Web Site Features Data for All States The Epidemiology of Dying and End-of-Life Experience web site has been updated and improved to include links to cause of death data by age, race, gender and county for ALL states. This on-line, searchable catalog of links to hundreds of web pages provides public data about demographics for people who died and their families and the experience of end-of-life care. The website also offers visitors the opportunity to personalize the site based on preferences for data on certain topics or states. EDELE is a project of The Carolinas Center for Hospice and End of Life Care and The National Hospice and Palliative Care Association (NHPCO) with funding from the US Agency on Aging. www.edeledata.org
12. New Survey Tool from NHPCO Focuses on Family The new Family Evaluation of Palliative Care (FEPC) survey tool focuses on the family at a post-death to capture family members perceptions about the palliative care provided to their loved ones. The tool provides a measure across programs. For more information or to download the tool, www.nhpco.org 13. Improving Pain Management Through Education Throughout September, The American Society of Pain Educators (ASPE) will launch a month-long calendar of educational events focused on pain management for healthcare providers, in recognition of Pain Awareness Month. The aim is to offer a broad educational agenda to reverse the present challenge of under-diagnosis and under-treatment of pain in the U.S. While they last, complimentary copies of a free pain resource guide also are available, www.paineducators.org
CONFERENCES
14. Fast-Track Palliative Care Program: Palliative Care Leadership Center (PCLC) Training Throughout 2006 and 2007 Sponsored by Center to Advance Palliative Care
Benefit from two days of on-site, hands-on training and a full year of follow-up mentoring by training at one of six Palliative Care Leadership Centers. Learn from the experience of established palliative care programs how to finance, design, market and operate a successful program. New curriculum is available for academic medical centers at select PCLC trainings. For a detailed training schedule, visit www.capc.org/pclc.
15. Pain Resource Nurse Training Course at the City of Hope Comprehensive Cancer Center September 6-8, 2006 / Durate, CA Sponsored by City of Hope Comprehensive Cancer Center Department of Nursing Research & Education
The primary purpose of this course is to prepare individual nurses or institutions to develop the role of the Pain Resource Nurse. For more information, http://sccpi.coh.org/2006%20PRN%20Course/Flyer.htm
16. NHPCO’s 21st Management and Leadership Conference September 11-13, 2006 / New York City, NY Sponsored by National Hospice and Palliative Care Organization
This forum of present and future leaders in hospice and palliative care will offer new insights on leadership, management and business from the country's leading business and health care experts. http://www.nhpco.org
17. Catholic Charities USA Reviving the Common Good, Renewing Covenant with the Poor September 14-17, 2006 / St. Paul - Minneapolis, MN Sponsored by Catholic Charities USA
Discussions, presentations, workshops, networking opportunities and social events are designed to enlighten, uplift and reenergize those in attendance. www.CatholicCharitiesUSA.org/gathering
18. 16th International Congress on Care of the Terminally Ill September 26-29, 2006 / Montréal, Canada Presented by Palliative Care Division, Departments of Medicine and Oncology, McGill University
Coalition executive director Sr. Karin Dufault and Dr. Christina Puchalski, MD, of the George Washington Institute for Spirituality and Health will present the coalition’s spirituality initiative project at this premier international palliative care conference, featuring five plenary sessions, 74 workshops, and numerous special seminars, research fora and symposia. Focus will include pediatric palliative care, healing and whole-person care, non-cancer end-of-life care, self-esteem, respiratory palliative care, and volunteerism. The registration and the complete conference program are available at www.pal2006.com
19. Communities of Color and Ideas for Change Audio Conference October 12, 2006 / 12 pm ET, 11 am CT, 10 am MT, 9 am PT Presented by Catholic Health Association and Providence Center for Health Care Ethics, Providence Health System, Portland, OR
Dr. Richard Payne, MD, director of the Institute on Care at the End of Life, Duke Divinity School in Durham, NC, will discuss the disparities in pain management and other forms of palliative care prevalent in the African-American community. Information describing ways to positively influence the care and comfort provided to, and sought by, African-Americans as they approach death will be shared. Registration deadline is September 8, 2006, and cost is $60 per site. www.chausa.org/audio
20. The 15th National Perinatal Bereavement Conference October 12-15, 2006 / Chicago, IL Sponsored by Pregnancy Loss and Infant Death Alliance This comprehensive national conference will focus on the experience of the death of a baby during pregnancy, birth or infancy. The conference will feature timely clinical information, advances in research and nationally renowned speakers to provide participants with a rich learning environment and networking opportunities. http://www.perinatalbereavementconference.org/overview.html
21. Practical Aspects of Palliative Medicine Integrating Palliative Care into Clinical Practice October 20-22, 2006 / Boston, MA Sponsored by Harvard Medical School Department of Continuing Education
This course will offer physicians and other clinicians the core information and skills needed to provide palliative care in a practice setting. Participants will develop a toolbox of skills needed and will have numerous opportunities for meeting with colleagues facing similar practice challenges. Plenary sessions daily. www.cme.hms.harvard.edu/courses/palliativemedicine
22. Building Bridges: Interdisciplinary Paths to Palliative & End-of-Life Care for People with Diverse Conditions October 27-28, 2006 / Tampa, FL Sponsored by the University of South Florida
Designed for researchers, clinicians and providers interested in state-of-the-art research and practice in palliative and end-of-life care, especially as it relates to persons with end-stage heart disease, cancer, Alzheimer’s disease and other forms of dementia. www.cme.hsc.usf.edu
23. 4th International Multidisciplinary Conference on Spirituality & Health Interweaving Science, Wisdom, and Compassion November 9-11, 2006 / Vancouver, BC Sponsored by the University of British Columbia This international conference will address how spirituality relates to health and the health sciences. The conference will offer presentations by and for scholars, scientists, and practitioners from multiple disciplines. There will also be opportunities to engage in facilitated discussion groups, experiential workshops and informal events. www.interprofessional.ubc.ca
24. ONS Advanced Practice Nursing Conference November 9-11, 2006 / Pittsburgh, PA Sponsored by the Oncology Nursing Society
The ONS Advanced Practice Nursing Conference is designed to meet the educational needs of nurse practitioners and clinical nurse specialists. www.ons.org
25. 7th Annual Institutes of Learning November 10-12, 2006 / Pittsburgh, PA Sponsored by the Oncology Nursing Society
Expand clinical skills, increase knowledge of the latest cancer treatments and advances, learn about the latest breakthroughs and enhance professional development at this conference which includes all-day institutes, mini-institutes and open sessions. www.ons.org
26. To Comfort Always: A Course on Palliative Care November 13-16, 2006 / Robbinsdale, MN Sponsored by North Memorial Health Care
Brochure is in production. For more information on this North Memorial Continuing Education course offering, call (763) 520-5999 (toll free: 877-396-5999).
27. Fifth International Palliative Care in the 21st Century Conference November 15, 2006 / New York, NY Sponsored by Professional Education Center of The Jewish Home & Hospital Lifecare System
The program features morning sessions and concurrent workshops on subjects ranging from integrating palliative care into a curative model, programs of excellence, collaboration and complementary medicine. For a complete agenda and registration information, www.jewishhome.org/pdf/Palliative_Care_FINAL.pdf
28. Ethics in the Healthcare Workplace: What’s Really at Stake? November 17, 2006 / Oklahoma City, OK Sponsored by Oklahoma Association for Healthcare Ethics
For more information, 1-405-236-2280, www.okabcd.org,
29. 2007 Call for Candidates: The End-of-Life Care Practitioner Program January – September 2007 Application deadline is October 15, 2006 Sponsored by The Alaya Institute
Based on Buddhist precepts, The Alaya Institute draws on centuries of tradition in supporting the transition from life to death. Requirements for acceptance include a regular and committed spiritual practice, experience in end-of-life care, and a desire to live and work in accord with their highest values. Highlights and themes include compassionate service, suffering and transformation, mystery and awe, cultivating presence, transition and completion. Course includes four extended weekend sessions, an eight-day intensive session and eight-day contemplative retreat. www.alayainstitute.org
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