Supportive
Care Coalition E-News is provided as a service to health care professionals.
The Coalition is comprised of 19 Catholic health organizations dedicated to
advancing excellence in palliative care and end-of-life care within their own
systems and throughout the nation. Our members operate health care facilities
in 48 states. Please visit us at www.supportivecarecoalition.org.
News
Psychosocial counselors who are fluent in French and/or Creole are needed immediately to assist victims of earthquake in Haiti. If you can assist, please contact Judson Flanagan at Catholic Relief Services, (410) 234-3120 or jflanaga@crs.org. For more information on relief efforts, visit the Catholic Health Association's home page.
Catholic Ministry Responds to Haiti's Crisis
Judith Vandewater, Catholic Health World, February 1, 2010
Leaders promise long-term commitment to rebuild Catholic health resources on the island.
Message From CHA President: Health Reform More Essential Than Ever
Catholic Health World, February 1, 2010
CHA President and CEO Sr. Carol Keehan, DC, issued the following statement on health reform in the wake of this week’s special election: “Amid the flurry of explanations, accusations and purported motivations for the victory of Senator-Elect Scott Brown in Massachusetts, some have decided it means the American people have rejected health reform. Uncritical acceptance of this is dangerous to the health of the American people. Even a cursory review of reality today demonstrates the continued need to significantly improve our healthcare delivery and financing system.” Read the full article online.
NHPCO Advocacy Alert - January 20, 2010
"Hospice Advocates should continue their outreach to Congress to make sure that whatever happens next, Washington knows that there is a united hospice community committed to providing compassionate, high-quality end-of-life care."
back to top
Opportunities
ANA Call for Public Comment: Registered Nurses’ Roles and Responsibilities in Providing Expert Care and Counseling at the End of Life
The American Nurses Association (ANA) is seeking comments on the following revised position statement: "ANA provides information in this position statement to guide the nurse in vigilant advocacy for patients throughout the lifespan as they consider end-of-life choices, and includes discussion of personal ethical dilemmas that can occur when caring for the dying." Download the position statement and provide your comments to the ANA Department of Nursing Practice and Policy, Attention: Cynthia Haney, JD, via e-mail, Cynthia.Haney@ana.org, by 5:00pm EST on February 8, 2010.
NHPCO’s National Conference on Developing the Care Continuum: Innovative Models to Meet the Unique Care Needs of Patients/Families
Call for Proposals; Submission Deadline: February 8, 2010
Main Conference: August 5-7, 2010; The Westin Boston Waterfront, Boston, MA
World Day of the Sick
Since 1992, the Catholic Church has celebrated World Day of the Sick on February 11 — the day on which the church commemorates the feast of Our Lady of Lourdes — under the sponsorship of the Pontifical Council for Health Pastoral Care. World Day of the Sick has three consistent themes:
- First, it reminds the faithful to pray intensely and sincerely for those who are sick.
- Second, the celebration invites Christians to reflect on and respond to human suffering.
- Third, this day recognizes and honors all persons who work in health care and serve as caregivers.
Download the CHA prayer service.
National Palliative Care Registry
CAPC created this registry to help develop operational standards and demonstrate the reach and impact of the field. To register your program or update your data, visit: register.capc.org. You can update your listing at get.palliativecare.org.
National Health Care Decisions Day - April 16, 2009
National Health Care Decision Day is almost two months away! Please complete the participation form to confirm your organization's commitment to supporting this initiative. Many outreach materials and suggestions are available on the NHDD Web site at "Organize Your Community."
Please consider spending 5-7 minutes to complete the NHDD survey for physicians.
back to top
Readings
Ending End-of-Life Phobia — A Prescription for Enlightened Health Care Reform
Benjamin Corn, MD, New England Journal of Medicine, Volume 361:e63, 12/31/2009
The free full text article is available online.
Palliative Access Through Care at Home: experiences with an urban, geriatric home palliative care program
Holley AP, Gorawara-Bhat R, Dale W, Hemmerich J, Cox-Hayley D., Journal of the American Geriatrics Society, 57(10):1925-31, October 2009, Epub August 21, 2009.
Read the abstract.
Raising The Standard: Palliative Care In Nursing Homes
Diane E. Meier, Betty Lim, Melissa D.A. Carlson, Health Affairs, 29, no. 1 (2010): 136-140 © 2010 by Project HOPE.
Read the abstract.
Making Hospital Mortality Measurement More Meaningful: Incorporating Advance Directives and Palliative Care Designations
Eugene A. Kroch, PhD, American Journal of Medical Quality, Vol. 25, No. 1, 24-33 (2010)
Read the abstract.
back to top
Resources
NIH, National Institute of Nursing Research (NINR) Palliative Care Brochure
The brochure is copyright free and may be reproduced without charge. Download the PDF. To order up to 25 print copies free, contact info@ninr.nih.gov or 301-496-0207. There is no charge for the brochures (with the exception of shipping costs for quantities greater than 25). Printer files are available on request for organizations that wish to reprint a co-branded version of the brochure.
The Unbroken Circle: A Toolkit for Congregations around Illness, End of Life, and Grief
Have you been using this resource offered by the Duke Institute on Care at the End of Life? If so, please take a few minutes to offer your feedback by completing the brief questionnaire.
With National Health Care Decisions Day (NHDD) right around the corner (April 16, 2010), please help get the word out about these advance care planning resources:
Aging With Dignity: Five Wishes
NHDD Advance Directive Resources
NHPCO's Caring Connections
Respecting Choices: An advance care planning system that works
Google Health
Take charge of your health information. It's safe, secure and free: Organize your health information all in one place; Gather your medical records from doctors, hospitals, and pharmacies; Share your information securely with a family member, doctors or caregivers.
back to top
Conferences and Other
Educational Opportunities
Presented by the Supportive Care Coalition and sponsored by the Catholic
Health Association of the United States
. . . a three-day conference
focused on advancing knowledge and best practices in palliative and
end-of-life care from the Catholic health ministry perspective.
October 28-30, 2010
St. Louis Marriott Union Station
Members of
our dynamic faculty include:
Margaret L. Campbell, PhD, RN, FAAN
Mary Ann Collins, MSHA
Sr. Peter Lillian DiMaria, O. Carm
Msgr. Charles Fahey
Sr. Margaret Farley, RSM, PhD
Betty Ferrell, RN, PhD, FAAN, FPCN
Pat Franco, PhD
JoAnn McCaffrey, DMin
Paula Marie Jones, MA
Mary T. O’Neill,
BCC, DMin
Steven Pantilat, MD
Fr.
Myles
Sheehan
, SJ, MD
Carol Taylor, PhD, RN
Joan Teno, MD, MS
Martha Twaddle, MD, FACP, FAAHP
Continuing education credits in
multiple disciplines are pending.
back to top
Hospice Foundation of America (HFA) Webinar Series
Bereavement Camps for Kids: Benefits and Challenges
February 1, 2010, 1:00-2:30 PM ET
Panelists include: Sherry Schachter, Director of Calvary Hospital’s annual bereavement camp in New York; Angela Hamblen, Director of Camp Good Grief in Tennessee; Bonnie Carroll, Executive Director of TAPS, which offers support to those suffering the loss of a military loved one; and Lesa Linster, National Camp Erin Project Director at The Moyer Foundation
Bereaved Children and Adolescents: Lessons from Research
April 14, 2010, 1:00-2:30 PM ET
Panelists include: J. William Worden, Lead Researcher for the Harvard Child Bereavement Study and Irwin N. Sandler, Regent’s Professor of Psychology, Arizona State University
Grieving Children and Adolescents: The Role of Internet Support
June 15, 1:00-2:30 PM ET
Panelists include: Pamela Gabbay of the Mourning Star Center and National Alliance of Grieving Children and Cendra Lynn, founder of GriefNet and KidsAid.com
Additional 2010 Training Locations:
New Orleans, LA
Memphis, TN
Abington, PA
Birmingham, AL
Presented by the Duke Institute on Care at the End of Life
Visit the APPEAL Web site for more information.
CHA Ethics Webinar: Medically Administered Nutrition and Hydration: Taking Another Look
February 23, 2010, 11:00 AM - Noon CT
Presenters: Ann Allegre, MD, director of medical programs for Kansas City Hospice, and Rev. Gerald Coleman, SS, Ph.D., vice president, corporate ethics, for the Daughters of Charity Health Systems
Presenters will examine important clinical and ethical/theological dimensions of medically administered nutrition and hydration in the context of the recently revised Directive 58 and the Ethical and Religious Directives for Catholic Health Care Services. The program will also describe the clinical implications and use of medically administered nutrition and hydration and for whom they are and are not clinically indicated. Click here to register and to learn more about the program and faculty. Contact CHA for more information: 202-296-3993.
back to top
AAHPM and HPNA Annual Assembly
March 3-10, 2010, Boston, MA
Register online
Download the conference brochure
Hospice Foundation of America (HFA) 2010 Living with Grief Teleconference
Cancer and End-of-Life Care
March 24, 2010, 1:30-4:00 PM Eastern
The program will address care options related to cancer diagnoses as well as loss and grief reactions for patients, families and professional caregivers. The teleconference will also examine psychosocial aspects of cancer, pain management, and ethical issues related to the disease.
CAPC Audio Conference: Incorporating Palliative Care Services into Long Term Care Facilities
March 25, 2010, 1:30-2:30 PM Eastern
Join Janet Larson Braun, RN, MSPH and Todd Coté, MD, FAAHPM, FAAFP of Hospice of the Bluegrass and Palliative Care Center of the Bluegrass as they discuss several models for increasing access to palliative care within long term care settings and address the barriers that currently exist. Register online.
NHPCO's 25th Management and Leadership Conference: Securing Our Roots, Expanding Our Reach
Pre-conference Seminars: April 20 – 21, 2010
Main Conference: April 22 - 24, 2010
Omni Shoreham Hotel, Washington, DC
Each year NHPCO designs new educational programming for the Management and Leadership conference, reflecting the latest trends and innovations in hospice and palliative care and addressing all aspects of management and leadership.
Download the conference highlights brochure.
Spirituality: The Invisible Ingredient in Health and Healing
May 6-7, 2010, Vancouver, B.C.
Sponsored by Providence Health Care
The focus of the conference will be on Spirituality in the Workplace, Spirituality and Aging, Spirituality and Change, and Care for the Caregiver. Participants will include: physicians and other health care clinicians; health care executives and managers; researchers; government leaders; instructors especially in medicine, nursing and other health disciplines; community and social service practitioners; primary care and religious leaders; educators; patients and families. For information please contact Elizabeth Turtle at eturtle@providencehealth.bc.ca.
back to top
The Art of Presence, 5th Annual Healthcare Renewal Retreat
August 23-29, 2010, Assisi, Italy
Presented by GWish
Integrators of spirit, heart, mind and body, the retreat leaders draw from their medical, psychological, spiritual and artistic backgrounds to provide an extraordinary learning/healing environment for the renewal of health professionals and care providers of all faiths. Register online at gwish.org.
End-of-Life Nursing Education Consortium (ELNEC) 2010 Training Calendar
The End-of-Life Nursing Education Consortium (ELNEC) project is a national education initiative to improve palliative care. The project provides undergraduate and graduate nursing faculty, CE providers, staff development educators, specialty nurses in pediatrics, oncology, critical care and geriatrics, and other nurses with training in palliative care so they can teach this essential information to nursing students and practicing nurses. Download the ELNEC fact sheet. Questions? Contact Pam Malloy at pmalloy@aacn.nche.edu.
Palliative Care Leadership Centers™ (PCLC) 2010 Trainings
To learn more, choose the PCLC that is right for you, and register, visit the Center to Advance Palliative Care's PCLC Web. Palliative Care Leadership Centers™ (PCLC) is a national training and mentoring initiative supported by a consortium of funders, with direction and technical assistance provided by the Center to Advance Palliative Care (CAPC). PCLC offers training and mentoring to help start and expand hospital palliative care programs in the United States. For general questions, please contact Jennifer Raiten at Jennifer.Raiten@mssm.edu or (212) 201-2683.
CAPC Campus Online
Consultation Etiquette
The single most effective way to increase referrals is to provide timely consultations that meet the needs of your referring clinicians, patients and families. Consultation etiquette refers to the rules, largely unwritten, that all consultants must know to be effective.This course will help you learn the common elements of consultation etiquette.
You will gain a clear understanding of:
- Key stakeholders for effective consultations
- Similarities and differences in palliative care consultations
- Rules of consultation etiquette
- Patient advocacy vs. respectful clinician
back to top
Supportive Care
Coalition Members and Staff
Supportive Care Coalition Member Systems (main administrative offices)
|
| Ascension Health |
St. Louis, MO
|
| Bon Secours Health System
|
Marriottsville,
MD
|
| The Catholic Health Association of the
United States
|
St. Louis,
MO
|
| Catholic Health Initiatives
|
Denver,
CO
|
| Catholic Healthcare Partners
|
Cincinnati,
OH
|
| CHRISTUS Health
|
Irving,
TX
|
| Covenant Health Systems
|
Lexington,
MA
|
| Franciscan Missionaries of Our Lady Health System
|
Baton Rouge,
LA
|
| OSF HealthCare
|
Peoria,
IL
|
| PeaceHealth
|
Bellevue,
WA
|
| Provena Health
|
Mokena,
IL
|
|
Providence
Health &
Services
|
Renton,
WA
|
|
Resurrection Health Care |
Chicago, IL
|
| Sisters of Charity Health System
|
Cleveland,
OH
|
| Sisters of Charity of
Leavenworth
Health System
|
Lenexa,
KS
|
| Sisters of Mercy Health System
|
Chesterfield,
MO
|
| SSM Health Care
|
St. Louis,
MO
|
|
St. Joseph
Health System
|
Orange,
CA
|
| Trinity Health
|
Novi,
MI
|
Contribute
to Supportive Care Coalition E-News
Items of interest to palliative care practitioners are welcome and may be
submitted to Carol River for
possible inclusion in this E-News publication.
Our
Mission
We are a coalition of Catholic health
ministries informed by our faith and values, which
through knowledge transfer, advocacy, and partnerships advances excellence in palliative care.
Our Vision
We envision a society in which all
persons living with or affected by a chronic or life threatening condition
receive compassionate, holistic, coordinated care. This will include relief of
pain, suffering and other symptoms from the time of diagnosis throughout the
process of living and dying. Such excellent care will be provided according
to need, respecting the values and goals of individuals, their families and
other loved ones. It will assist them to live fully in community and will
support survivors in their bereavement. Through such care, we believe that
God's healing love is revealed.
back to top
|
|
